Sunday, February 27, 2011

Buggies For Good Program - Our Story

My second son, Cameron, was born two months early on New Years day in 2008.  He spent one month in Waikato NICU and came home discharged as a healthy baby, with all the best wishes.  It soon became apparent that this wasn't the case, and in May 2008 he was diagnosed with Cerebral Palsy and epilepsy.  I have owned Mountain Buggy prams for 4 years(just a beginner really!) - starting with our black Urban Elite in 2007, and then our lime/black Swift in 2009.  Even though he was underweight and had virtually no muscle mass, he was difficult and heavy to hold because he had no control of his head - heads are heavy!  Our Swift went everywhere with us and was so easy to use.  We also got given a buggy from his physio therapist to aid in postural support.  It was heavy, bulky, difficult to fold(and came in two parts) and yuck!  No matter how good it was for him!  Being the buggy connosieur I thought I was, it just wasn't up to my standard and I often alternated it with his MB.  With the MB, I often took it out just to blend in and pretend we were the same as everyone else. 

In July of 2010 Cameron got a wheelchair.  Apart from having wheels, it is nothing like a buggy.  It has no hood, does not lay back like a buggy does and is about 10x the weight!  We have to face that Cameron will need a wheelchair for a good part, if not all, of his childhood at least.  It is our future, but as Cameron is only just 3 years old I'm going to be squeezing in as much buggy time as I can!  My main concern was protection from the elements of the weather, both sun and rain.  Being that we had no hood, we had no place to attach shade or weather cover.  I walk everywhere, and no matter how much sunblock we applied when we went out, with the start of summer, Cameron would come home with his knees roasted.  When I go out in the sun, I like to keep in the shade as much as I can and it just didn't sit right with me to have my son so exposed to the sun - especially as he was sitting still, strapped in, he couldn't shield himself even if he wanted to.  A hat wasn't enough to protect his body.  I looked into hoods and shields for the wheelchair and was told that they didn't "do" them and to walk along holding an umbrella - not practical!  Finally I found an umbrella that attached to the wheelchair but it was so big I couldn't see past(or over) it!  I reverted back to his Swift more and more, but because he can't support himself in a sitting position, he was fast running out of lying down room. 

I knew that Mountain Buggy used to make a special needs buggy, to hold bigger children, and I began making enquiries.  It was a lot of money and at the time I had no hope of coming up with the cash to buy it.  I even found another Mum on the MB Facebook page that had the special buggy - so I was seeing pictures of just how good it was and what it could do out in the open that the wheelchair could never do - from shading my child to going on the beach!  I made yet another enquiry and mentioned that I was going to try and look into community grants and funding.  A change in circumstances for our family meant that we could not afford to buy it ourselves.  It was at that point that I was introduced to the program Buggies for Good and was given an amazing offer - Mountain Buggy were GIFTING our family with their special needs buggy - Ranger.  I did what any woman would do when faced with great news - I cried!  I just couldn't believe the generosity of the offer, from a company whom I thought was there to primarily make money.  I quote from one of the emails I received from them - "sure, we are a business, but we're a business made up of real people, mums and dads trying  to make a difference!"  The difference this buggy was going to make to our family couldn't be put into words. 

As a thankyou, I decided the best I could do was donate our Swift to their cause - Buggies for Good.  It was coming to the end of it's useful life with our family anyway.  It was in excellent condition and could have sold for a great price, but I couldn't do that, knowing I had been gifted a new buggy already.  I wanted to share the same joy and give a gift of our own.  I suggested to Mountain Buggy that a family be found within the charity True Colours.  True Colours is based here in the Waikato and directly helps our family out - they are a charity of counsellors, therapists and private nurses that gives whatever help is needed to families that have a sick, disabled or life threateningly ill child.  I thought how fantastic it would be that a family with parents that don't have a lot of money because they are at home caring for their child and cannot work to get a buggy!  Too often I have met families in this situation, they afford not much more than the necessities of life, and getting out and about is made harder still by the care they dedicate to their child.  A family like this could really use a MB Swift - they cannot buy it themselves, but it is perfect for them - being small and narrow it can fit on buses and is so easy to take around for hospital trips, sitting in doctors offices and in lifts getting to and from all the different appointments and procedures they may face.  Mountain Buggy also thought this was a fantastic idea so at present our old Swift is down in Wellington, getting a facelift, and will soon be shipped back here to Hamilton where True Colours will present it to a family that will no doubt do what I did when faced with the gift of a buggy to make their life easier - cry with gratitude, thanks and appreciation!

Thankyou Mountain Buggy.  I hope that you can sense just how much this means to my family.  Buggies for Good really is good, and I hope with many more generous donations from the public that the scheme continues for good!

Friday, February 4, 2011

Ranger goes to school

Well we're really enjoying the Ranger.  Took it to school yesterday and Cameron got nice and comfortable and fell asleep in it.  Kept his head up too!  Way to go my boy.  I am really enjoying using a sturdy Mountain Buggy, it feels good and looks pretty good as well! 

EXCITING STUFF!  True Colours are going to be the recipients of Buggies For Good with my Swift!!  True Colours help us a lot with Cameron and all things disability related.  I approached MB and asked if they would consider donating to True Colours so that a family or two with a sick child could use a Mountain Buggy.  It's all happening very soon and I am so excited, and well pleased to be a part of something so darn cool!!  MB will refurbish and fully service my Swift, and then courier it to True Colours here in Hamilton - who will then decide on a family who they think will really love and appreciate a buggy.  When you have a sick child, it's not always possible to work, in which case finances become tight and often you just get by and feed the family.  A new set of wheels will enable some families to get out and about more, easier access to hospital appointments and much needed fresh air and time out.  The good thing about Mountain Buggy for this job is that they can take a bigger and heavier child, and extra goodies that some parents have no choice but to carry around.

This blog isn't quite turning out to be as deep and meaningful as I would have hoped - yet.  I'll just blame it on having so much else to think about.  Cameron is starting daycare very soon.  I wanted him to go to daycare so I could start to study nursing.  I can't do that at the moment because he needs a lot of time to ease into daycare, and he is only funded an ESW for two days a week, which is no where near enough to do full time study.  Don't want to do part time because you only have 5 years to start and finish nursing.  Plus, Cameron's respite care place said that he won't handle five days in care.  I have deep reservations on if he's even going to handle two days.  We. Will. See.  It would be nice though, if some things were normal.  If it were a case of simply dropping him off.